Our Amazing Daughter,
Harper Beatrice Clay, Gets A Second Chance at Life
With thanks to God, our donor baby and his or her family, and an amazing team of surgeons, our beautiful baby girl received her new liver on July 12, 2009.
(Please visit Blogs/Updates to read an open letter to our donor baby's family. You can add your comments if you wish, so that one day we can share them with the baby's family.)
While she is not out of the woods yet -- and some days have been very touch-and-go -- without this new liver her chances of survival were zero.
Harper is currently in Tucson's University Medical Center Pediatric ICU. Her condition is critical but stable. Since the transplant, she has had to have 11 additional surgeries (15 total in her life; at 16 months old, she has spent 8 of those in the hospital, exactly half her life). Every day is a miracle!
To learn more about her battle with cystic fibrosis and liver disease, please visit the "More About Harper" link.
We are from Phoenix but stay in Tucson Mon-Fri (weekends we spend with our other kids at home). We'll be doing this until her recovery is complete -- at this time, that's at least another 2-3 months. We have four other children to provide for. We are reaching out to the community for donations to help us during this difficult time.
Ultimately, we hope you are moved to pass the link along, donate, become an organ donor… or say a prayer.
We believe strongly that God has a plan for our baby girl and our family and we are doing our very best to honor that plan and Harper’s indelible spirit.
We send our deepest gratitude to all of you who have prayed, donated money and given us your love and support over these past several months. Thank you and God Bless!
New post-transplant pictures at: http://www.facebook.com/album.php?aid=5761&id=1790379722&l=21bb1e47f4
Harper has a FaceBook page at
http://www.facebook.com/BabyHarper
(Please visit Blogs/Updates to read an open letter to our donor baby's family. You can add your comments if you wish, so that one day we can share them with the baby's family.)
While she is not out of the woods yet -- and some days have been very touch-and-go -- without this new liver her chances of survival were zero.
Harper is currently in Tucson's University Medical Center Pediatric ICU. Her condition is critical but stable. Since the transplant, she has had to have 11 additional surgeries (15 total in her life; at 16 months old, she has spent 8 of those in the hospital, exactly half her life). Every day is a miracle!
To learn more about her battle with cystic fibrosis and liver disease, please visit the "More About Harper" link.
We are from Phoenix but stay in Tucson Mon-Fri (weekends we spend with our other kids at home). We'll be doing this until her recovery is complete -- at this time, that's at least another 2-3 months. We have four other children to provide for. We are reaching out to the community for donations to help us during this difficult time.
Ultimately, we hope you are moved to pass the link along, donate, become an organ donor… or say a prayer.
We believe strongly that God has a plan for our baby girl and our family and we are doing our very best to honor that plan and Harper’s indelible spirit.
We send our deepest gratitude to all of you who have prayed, donated money and given us your love and support over these past several months. Thank you and God Bless!
New post-transplant pictures at: http://www.facebook.com/album.php?aid=5761&id=1790379722&l=21bb1e47f4
Harper has a FaceBook page at
http://www.facebook.com/BabyHarper
